Disease-specific data sets of de-identified patient records, built from EHR data, linked with claims and mortality, in accordance with FDA RWD guidance.
Each Pragmatic Registry is a longitudinal, selection bias-minimized disease-specific data set drawn from academic medical centers and community health systems, covering the full patient journey and containing comprehensive demographic, clinical, and resource utilization data elements.
All important data elements are optimized for accuracy, completeness, and traceability, with measured reliability that supports credible assertions for clinicians, payers, and regulators.
Structured
30%Unstructured
70%67F, 40 pack-yr hx. Wheeze and productive cough worsening over 6 days; nocturnal symptoms most nights. Spirometry: FEV1 61% predicted, FEV1/FVC 0.64 post-bronchodilator, partial reversibility. Eos 410 cells/µL. Two courses of systemic corticosteroids in past 12 months; ED visit in Nov. MDI technique poor, re-taught in clinic. Impression: severe persistent asthma, inadequately controlled on current regimen; consider biologic eligibility if control not achieved. Plan: step up ICS-LABA, repeat spirometry 6 wks, pulmonology referral.
Not actual patient data.
EHR data is roughly 30% structured, 70% unstructured: the majority of clinical signal lives in notes and reports.
Pragmatic Registries capture that clinical richness: curated concepts drawn from the full record, narrative included, at scale.
Examples of complex variables supported by Pragmatic Registry data:
Five areas have registry datasets ready today. Oncology and rare disease are delivered as bespoke projects.
Named in the published cross-cohort comparison: structured-data phenotyping fell short of regulatory-grade accuracy where deep phenotyping met or exceeded it.
F1 · published asthma phenotype
Migraine cohorts are named in the published comparison, where severity and frequency live in narrative rather than coded fields.
New Pragmatic Registries are defined and produced with customers. Women’s health and cardiometabolic are already emerging.
Data sheet
Supports heart failure (all variants), stroke, pulmonary hypertension, and other cardiovascular conditions.
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Data sheet
A high-quality real-world data set supporting ulcerative colitis, Crohn’s disease, celiac disease, and other gastrointestinal conditions, along with rare diseases like primary biliary cholangitis.
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Data sheet
A high-quality real-world data set supporting a variety of neurodegenerative, neurodevelopmental, and neuroinflammatory conditions, as well as mental and behavioral health disorders.
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Data sheet
Supports asthma, chronic obstructive pulmonary disease (COPD), interstitial lung disease (ILD), idiopathic pulmonary fibrosis (IPF), and other respiratory conditions.
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Each Pragmatic Registry is built from validated extraction, imputation, and clinical inference models produced by the Curation Platform, delivering the reliability pharmacoepidemiological studies require.
Learn moreReady forPragmatic Registries plug directly into the Evidence Platform, so epidemiologists can move from study question to results without additional data preparation.
Learn moreSpeak with our team about how the Verantos pharmacoepidemiology stack can accelerate your timeline.